Last Update: 11 March, 1999

11 March, 1999

Our daughter, Emily, is to have the VNS implant surgery tomorrow, March 12,at Children's Hospital in Birmingham. We were told of this device only acouple of weeks ago as Emily's neurologist was detailing to us the optionswe had remaining to try to control her seizures. We are fortunate thatEmily was accepted as a candidate for she is only 11 months old. We arevery optimistic after reading all of the positive results of those thathave posted stories, but we are still very guarded about the potentiallong-term benefits for Emily because of her severe brain abnormalities thatform her basic underlying condition. She was diagnosed with Linear NevusSebaceous Syndrome that has manifested itself in her brain in the form ofvarious neuronal migration disorders (Schizencephaly, Lissencephaly, etc.). She has had seizures from the day she was born and we have tried a numberof meds, all without lasting success. We will keep you updated as to herprogress.

More to come